Dear Special Needs Parent,
This unexpected life is weird, wonderful, wild and ugly, isn’t it? I think we, of all people, are the ones who can rightly say, “It’s complicated.” Hang in there. You are brave, even when you don’t feel brave.
The best advice ever given me is what I offer you: Don’t ever give up hope.
It might not look great right now. In fact, things might look pretty bleak. You might not imagine how you’ll ever be lighthearted again. Your life is so intense, you can’t think about anything but big, heavy issues. Things you never used to think about. Things your friends never have to think about. Things you wish you didn’t have to think about, but you must. It’s not an option. It’s your life.
You may wonder how in the world you went from such a blessedly normal existence to this slightly bizarre life, where suddenly you understand medical terms without the benefit of a medical degree. At times, your existence seems surreal. You never thought life could be so different than what you expected.
You may have lost friends. Oh, not all at once. But little by little, the friendships fell by the wayside. Some you can trace back to relocation, some…you just lost. Maybe you saw their compassion turn to impatience, or maybe they couldn’t handle your pain. But some friends have faithfully stayed by your side. And new friends have joined you in your journey. These are the true friends.
And pain…pain is now part of your life, whether you like it or not. It’s like an unwelcome member of the family, speaking up at inconvenient times. Sometimes your pain is quietly managed in the private places and cover of night. But other times, your pain overwhelms, shouting for recognition in the sunshine of day. Pain is that ever-present thorn in your side that must be addressed. When it is, pain can be reasonable. When shoved aside, pain becomes a monster waiting to pounce, grown beyond proportion.
Why? you ask. Why me?
There are no easy answers to why. But take heart, friend. The best news is this: God is on your side. When you wonder if there is anything good left in this world, the answer is YES. Yes! Look in the mirror. You are God’s creation. Your child is God’s creation. You are the reason Jesus came to the earth to bridge the gap sin left between God and man. Because of Jesus, we have hope for our future. We have hope for our children. We have hope for our happiness. We have hope for our world. Jesus loves children, and He loves you. Even when we think our children suffer unimaginably, He never leaves them. He is faithful. We have hope through Him that we will never be alone. We will always be loved. Our struggle here on earth will not be in vain but for a purpose. His purpose.
Don’t lose hope, friend. You have Jesus.